Tuesday, March 29, 2011

Hi Friends,
This is just a quickie, but I wanted to share something about Bear today. It's just another example of how differently he sees things sometimes. His Vision therapist send home sheets every couple of weeks to have him do things that are related to what he is reading. We have gone and taken care of and played with dogs, played. We've checked out the inside and outside of a car and talked about relevant occupations related to cars etc. Well today's was about stranger danger and making sure that your child knows emergency procedures, phone numbers, etc. Well, Bear has known his address, his grandparent's address, home phone, cell phone, and grandparent's home and cell phones since he was 3 because I never wanted him to not be able to tell someone where he needed to go if something happened to me and we were separated. (Mommy's biggest nightmare)Well, I was trying to explain to him about a stranger. He doesn't know any strangers. If he could see, he would be the kid who would go up to anyone and talk to them. Well, I was telling him that a stranger might try to lure him to his car etc with promises of treats and then might do something that could hurt him. Well, Bear says,"Mommy, would he have a gun?" I was surprised that he would ask that and interested at how he knew about that possibility. Then, he finished his question. "Mommy, if he had a gun, would he shoot me out of it like a cannon?" Aye, Yi, Yi! Lord help me. We talked some more, but I'm not sure he gets it.

Blessings,

BEARZ Mom

Sunday, March 27, 2011

Back to BEAR

Well,as I said previously,Bear is now in First grade. The year started a little rough, but overall has been pretty good. He began the year with one teacher and due to budget and zoning issues, received a new one about 2 months into the year. Overall, Bear has had a good year. He has a great techer, continues to have the same awesome therapists and now has his own paraprofessional. She is amazing with him. She is loving and kind, but still tough and demanding ,but in a good way. She has high expectations for him just as she knows I do. He has proven to be a well mannered, very smart little boy with varied interests.His interests don't tend to be what the "typical" child is interested in though. I don't know if that is because of his blindness or the fact that he is considered on the autistic spectrum, but he tends to focus on certain things for a while. At Christmas time it was dustbusters. He does not enjoy the vacuum cleaner at all unless he can work the buttons himself, but my mom got a dust buster in the fall and he went crazy for them. Everytime he went there, he wanted to hear it. He would ask if it was charging and constantly asked me when I was going to get one. He wanted a toy one for Christmas. It was all he talked about for months. Well, he got a toy one for Christmas and played a little with it, but soon that obsession was done and he was on to another one.
Now,he is in love with cars- a little more boyish- but he wants to know what kind of car and is it a car or a van and if it isn't what he wants to be, he pretends it is- ie my van lately has been an airplane and a car as well as a church bus in his mind- I never know what I'm gonna be driving! LOL
His other obsession is baths and showers. He wants me to wake him in the morning so he can turn on the bath or shower for me. He wants to hear it and if I take a bath after he goes to bed, instead, he asks "Mommy, did you take a bath or a shower?" "Mommy, why did you take a bath instead of a shower?" "Mommy, did the water come from the top or the bottom?" etc etc etc. He is also obsessed with Barney lately. Not the worse thing to be obsessed with, but admittedly, mommy gets tired of it. When most kids his age were loving Barney, he had no interest. Now, he is at the age that most boys would DIE before they would even say Barney, and he can't get enough of it. Yesterday, he asked me what would it be like if the rain was really lemon drops and gum drops. I told him "it would be sticky." Well, with that thought, I guess I better go take a bath, or a shower,so I can answer his questions about it tomorrow.

Blessings,

BEARZ Mom

What a Year it Has Been!!!

Well,it has been quite a while since I posted anything. I appologize for that and I hope to do better this time.I am going to give a quick explanantion for whay I haven't been posting. You will also notice that the posts have changed somewhat. They will focus some on Bear still, but there will be more about issues that we face as a family based on changes we are going through.
It was quite a year! Bear was not the only one going through changes. The whole family has. When 2011 greeted us with new opportunities to grow and change,we made a big one. Bearz dad and I decided to separate. I returned to work after holiday break heavy hearted, but determined to not let things in my personal life affect my work life. Trying to be mom and dad and trying to work out things so that Bear still got time with both of us and trying to make sure that his view of his dad wasn't tainted by my personal feelings sounds alot easier than it was/is. I did my best. I prayed ALOT and I leaned on family and good friends to get through it. It did take a toll on my health however and something I was diagnosed with back in 1999 returned with a vengeance. I was told that I again had Chronic Fatigue Immune Deficiency Syndrome. I had it in 99 and after quitting my job and really taking care of myself, it went into something like a remission for a while. However, the stresses of the year both personal and professional proved to be too much and I once again found myself facing this disease. Knowing that there was no way I could even consider quitting or even cutting back on work, I did everything I could and I still am to keep being able to work. It means a lot of cutting back. It means trying to eat right and it means not always being able to do what I want to do. The thing that I have the toughest time with is scaling back on what needs to be done. I finally get a little energy and try to get some things done. However, if I overdo, I am no good for a long time. There are days that I go to work feeling barely there. I have been so tired that I couldn't speak or think coherently, but I knew I needed to be there. My students are pretty great. I've told them that some days they just have to give me a minute to think. Some days I need a nap almost as soon as I get out of work and yes... there are a few days when I am just tooo sick to go at all. I hate those days and I try to make them as few and far between as possible. But, that is the life of this illness.
Next post will focus more on Bear

Blessings,

BEARZ Mom